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Cure Tay-Sachs Foundation
September 13, 2008 Click here to learn more. To sign up send an email to dream@curetay-sachs.org. Please send the names and ages of your children, your address and phone number, the email address we can reach you at, and IF you need collection jug(s). Senate Resolution 594 was passed by unanimous consent on July 8, 2008. Introduced by Senator Sherrod Brown (OH) and co-sponsored by Senator Evan Bayh (IN), September 2008 is officially proclaimed National Tay-Sachs Awareness Month!Tay-Sachs Awareness VideoTo watch the Cure Tay-Sachs Video and see Dakota Bihn and her friendsThe Michigan Bucks in partnership with the Cure Tay-Sachs Foundation have created the Goals for Dakota Program. People that support finding a CURE for Tay-Sachs disease can pledge money for every goal the Michigan Bucks score in the 2008 regular season (they average 50 a year). The goal is to accumulate enough pledges to make each goal worth $1,000 and raise $50,000 for Tay-Sachs research. All pledges will result in tax deductible donations (with a receipt provided) and 100% of the money raised will be spent on Tay-Sachs research. To make a pledge click hereTay-Sachs kids video click here Have you seen the CTSF Race Car? Click Here. A special thanks to the Ragland Family who lost thier child Clayton to Tay-Sachs disease in 1999 and the Burdel Racing Team!!! We have two billboards on Interstate 90 on the west side of Cleveland between West 117th and Warren Road (on the south side) the Ryan Babo and Conner Hopf billboards are currently up replacing the Dakota Bihn and Elise Rochman billboards. Artwork of Tay-Sachs Kids by Ralph Keefner CTSF $50,000 Grant Press Release Tay-Sachs families talk about the disease November 2006 was Tay-Sachs Awareness Month in Maryland November 2007 was Tay-Sachs Awareness Month in Ohio and December in Missouri March 2008 was Tay-Sachs Awareness Month in Florida; April 2008 was Tay-Sachs Awareness Month in California; May 2008 was Tay-Sachs Awareness Month in Illinois and Michigan; June 2008 was Tay-Sachs Awareness Month in Arizona; July 2008 was Tay-Sachs Awareness Month in New Jersey and New York; August is Tay-Sachs Awareness Month in North Carolina and Louisiana; September will be Tay-Sachs Awareness Month in The United States and Kentucky;October 2008 will be Tay-Sachs Awareness Month in Georgia; President Bush is considering a Presidential Message calling September National Tay-Sachs Awareness Month and the US Senate has introduced Resolution 594 to declare September 2008 as National Tay-Sachs Awareness Month! 
Cooperation among five highly respected research institutions has created the Gene Therapy Consortium. Gene Therapy uses modified virus cells as vehicles to transport and duplicate Hex-A enzymes into the brain. The technology has shown great promise in animal models and the current research plan (if properly funded) targets clinical trials in the next three to five years. Learn more... Gene Therapy in the News: The Boston College Chronicle has an article in its February 14, 2008 Edition on Page 4 about the Tay-Sachs Gene Therapy Consortium. Visit the Tay-Sachs Gene Therapy Consortium website at www.tsgtconsortium.com. To see video of mice treated with gene therapy, click here. The Cure Tay-Sachs Foundation is dedicated to funding the on-going research needed to find treatments and a cure for Tay-Sachs Disease. Once the cure for Tay-Sachs has been found - and we will find it! - we will dedicate our efforts to promoting carrier-testing and Tay-Sachs awareness initiatives. To begin the journey into Tay-Sachs Awareness, click here. Have you ever heard the expression "One in a million?" I am sure most everyone has. I'd like to try and explain what "one in a million" means to me. The chances I would have a child affected by Tay-Sachs disease seemed like "one in a million." I had never even heard of the disease before my child was diagnosed with it. Now we battle with the "one in a million" odds that we can find a cure in time to save my beautiful daughter. We all think the odds are so remote, we don't need to worry about the hundreds of rare disorders. When the odds catch up with you, everything changes. Let me try and put it into perspective for everyone... read more |
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