US Tax Deductible EIN: 26-0256621

- (562) 212-1071

- 2409 E. Luke Avenue Phoenix AZ 85016

US Tax Deductible EIN: 26-0256621

- (562) 212-1071

- 2409 E. Luke Avenue Phoenix AZ 85016

Our Mission

The Cure Tay-Sachs Foundation is dedicated to funding the on-going research needed to find treatments and a cure for Tay-Sachs Disease.

Once the cure for Tay-Sachs has been found - and we will find it! - we will dedicate our efforts to promoting carrier-testing and Tay-Sachs awareness initiatives.

To begin the journey into Tay-Sachs Awareness, click here.

What is a Clinical Trial???

Keep up to date with the three leading research organizations:

Sio Gene Therapies: www.siogtx.com

Intrabio: www.intrabio.com

Taysha Gene Therapies: www.tayshaGTX.com

RESEARCH GRANT ANNOUNCEMENT!!!! $200,000 Awarded!!!

The Board of Directors of the CTSF is very pleased to announce our latest financial grant in support of our goal of finding treatments and a cure for GM2 diseases. The CTSF awards $200,000 USD to Queens University and it's principal investigator, Jagdeep Walia, for the in depth study of a rare form of Tay-Sachs disease known as Tay-Sachs AB Variant. This particularly rare form of Tay-Sachs currently has no treatment. This money will allow for animal models and activities that have the potential to lead to Gene Therapy for the AB Variant.

The CTSF continues to invest in leading edge research for Tay-Sachs and Sandhoff diseases. If you can help us to continue this work, please consider making a donation on the donate now button above. This work is your donation dollars at work!!!!

Cure Tay-Sachs Foundation

The Cure Is Within Reach!

Since our creation in June 2007, the CTSF has raised $4,995,464 from thousands of kind and generous donors. We have issued research grants to 9 researchers/laboratories around the world, and made impressive progress towards our ultimate goal... The Cure!

There is HOPE in your HELP!!!

Donate Now

2021 Donor Recognition

CURE Level: $5,000+ Donation - Delta Dental Community Care Foundation, Richard Karl, Take a Hike Tay-Sachs 2021, Taysha Gene Therapies, University of Mass. *** Research PhD: $1,000 to $4,999 Donation - Derrick and Faith Stidham, Holly McDonald, Johnathan Rabinowitz, Lori Combs, Nu-Di Corporation, Race Roster, Wade Mattingly *** Research: $500 to $999 Donation - Eugene Morris, FACEBOOK DONORS, HMI Industries, Sabrina Hiltunen, United Way - Lorain Ohio *** Treatment Provider: $250 to $499 Donation - Blackbaud Giving Fund, Bright Funds, Christina Juhasz, FACEBOOK DONORS, June and Karl Reidel, Lisa Nielson Laptalo, DMD, Liz Puckett, Paul Kapalko, Race Roster, TamiDoyle, United Way - Lorain Ohio *** Symptom Manager: $101 to $249 Donation - Amazon Smile, Becky Warren, Benevity Fund, Bob and Jean Bihn, Charity Aid Foundation - State Farm Employees, Delores Leo, FACEBOOK DONORS, George and Gloria Crenshaw, Gloria Nelson, Gregory Scheurich, Julie Rabinowitz, L.I.J. Ladies, Roger May, Santhosh Manayilakath, State Employees of Indiana, Thrivent *** Jacob Sheep Parent: $100 Donation - A Touch of Georgia Chiropractic, Anita Sethi, Atlanta Jewish Federation, Bill Pigula, Charity Aid Foundation - State Farm Employees, Crispino Pastore, Dayle Rodenborn, Ellen Brezic, Greg and Yvonne Alburtus, Jane Dorothy Perlmutter Foundation, Jo Ann and Allan Rabinowitz, Joann Combs, Kevin Scullen, Melissa Martz, Michael Goldberg, Michael Rubin, Monica Minter, Pat and Ralph Martz, Patricia Beaudry, Robert and Carol Rowan, Scott Cameron, Shell Oil Company Employees, Thomas Freese, Whalin Harter-Leahy *** Care Provider: $1 to $99 Donation - Alexander Turner, American Express Foundation, Angie Kinzinger, AngieKinzinger, Ann and Frederic Seplow, Benevity Fund, Blackbaud Giving Fund, Brad Devine, Carol Robalin, Cecelia Corley, Charity Aid Foundation - State Farm Employees, David Shumsky, Deborah Marnien, Dylan Baijnauth, Eileen Bretherick, Elizabeth Masiero, Erika Sauseda, Helen Rheingold, Jane Vaquez, Jazzylynn Miller, Jill Sadowsky, Jodi Friedman, Johnson and Johnson Company, Joseph Reising, Karen Weissberg, Kashif Zahoor, Liz Warren, Marco Guzman, Marion Conti, Matthew Visoskas, Maureen Bihn, Megan Zinser, MeganZinser, Meghan Granger, Michael Stamey, Michelle Storto, Network for Good, Nicole Minichiello, Richard and Maureen Bihn, Sagar Mehta, Sarah Mattingly, State Employees of Indiana, Stephanie Gelber, Tara Keefner, Tim Gannon, United Way Central CA, United Way - Central CA, United Way Central CA., Vish Nadaarajah, Wendy Parker ***

Click here to view Donor List

Donate In Honor or Memory Of: (click on button(s))

In Honor or Memory Of

Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal Donate With Paypal

Matching Gift and Volunteer Grant information provided by
Powered by Double the Donation

Tay-Sachs disease is caused by the absence or insufficient level of a vital enzyme called Hexosaminidase A (Hex-A). Without Hex-A, a fatty substance or lipid called GM2 ganglioside accumulates abnormally in cells, especially in the nerve cells of the brain. This ongoing accumulation, also called substrate, causes progressive damage to the cells. In Classic Infantile the destructive process begins in the fetus early in pregnancy, although the disease is not clinically apparent (symptoms do not start) until the child is several months old. By the time a child with Tay-Sachs disease is three or four-years old, the nervous system is so badly affected that life itself cannot be supported. Even with the best of care, all children with classic Tay-Sachs disease die early in childhood, usually by the age of 5, although some do live longer.

How do set up a free Facebook Fundraiser?

Many of you have asked how to set up a FB Fundraiser.... here ya go. You can create fundraisers for charitable organizations and personal causes on Facebook for Birthdays, Anniversary's, or any occasion!

To create a fundraiser for the CTSF: (no cost to you!)

1.  Click Fundraisers in the left menu of your News Feed

2.  Click Raise Money...

3.  Select Nonprofit/Charity (Cure Tay-Sachs Foundation)

4.  Select a charitable organization, choose a cover photo and fill in the fundraiser details

5.  Click Create

IT'S FREE, IT'S FUN, AND ALL $$$ GOES TOWARDS RESEARCH

Family Stories

Nikko's Story

Nikko was born on May 14 2015 and he is our firstborn son. Nikko since day one I always knew as his mother that he was angelic and filled a room with so much love with just his presence. What I didn't know was Nikko would be

Brennan's Story

Words cannot express what a privilege it was to be Brennan's parents. The Lord chose us to care for this precious child and now he is home. Brennan passed on March 4, 2016, in the comfort of his own home. It was fairly sudden and our hearts are broken. Brennan's parents, Holly and Royce Stringer, reside in Prescott, Arizona.

Alyssa's Story

Alyssa Tyner was born on a pretty morning on June 19, 2014. We were so happy and blessed to finally have our family complete. Alyssa was the little sister to Leilani, who felt proud to be the big loving sister.

Krystie's Story

Krystie Anna Karl-Steiger was born on January 26, 2006 on a warm sunny winter day in California. Our precious little girl had a full head of hair, and gulped down her first bottle in record time.

Ryan's Story

Ryan Anthony Babo was born February 19, 2002. Like all Tay-Sachs children, he was absolutely beautiful. I remember lying in bed next to him when he was just a week old, watching him sleep, wondering what I had ever done in my life to deserve him.

Molly's Story

Molly Grace was born on September 26, 2003. She was born 2 months early and weighed only 4lbs 0oz. Although she was so small she was very healthy.

Elise's "Big Elise" Story

Elise Catherine ten Berge was born on February 5, 2003. She was our first child and as all new parents do, we thought about what Elise's future would be like: her first word, her first step, and her first day of school.

Dakota's Story

Dakota Jean Bihn was born on May 30, 1999. She was a beautiful baby, weighing in at exactly 8 pounds. Everything about her seemed perfect. During Dakota's first year, she developed as a normal baby should. She sat up, rolled over, ate, and walked, all when she should.

Conner's Story

Conner, a precious miracle and an amazing creature sent to Carl, Brenden and myself one cold, snowy January day. From the second he entered our life, I knew in my heart he was so incredibly special. His first smile, his first cry, even his first breath, he was--and remains--beautiful.

Lexi's Story

My name is Alexis Nichole Markowich or just "Lexi". I was born on March 9, 2001 to Craig and Nichole Markowich and I also have a big sister Brianne. When I was four, on August 4, 2005, we got the devastating news that I had Juvenile Onset Tay Sachs Disease (JOTSD).

Isabel's Story

Isabel was born in Buenos Aires on February of 2009. Until the age of two Isabel was a healthy little girl. She had the life that any other child could have: school, little friends at park, holidays and trips to Spain to visit her family. And always a big smile on her face...

Lexi's Story

Our daughter Lexi was born on March 30, 2011. She was born in Junction City, Kansas right outside of Fort Riley. I am in the army so.....

Nathan's Story

Our son Nathan Harney is almost 17 months old. He is a wonderful, happy baby who has beautiful blue eyes, a huge personality, and is the light of our lives. He is a gentle soul that we have been blessed with......

Karin's Story

My sisters and I had what seemed to be a normal up bringing in Southwestern, Ohio to a set of parents who were regular too.....

Isaiah's Story

On March 16, 2007, Isaiah came into the world at 9:41 PM weighing 8 lbs. 6 oz. he was greeted by his daddy, Grandma Lisa, and Great Aunt Chaundra.

Rachaeli's Story

Rachaeli entered this world with her eyes open wide; God delivered her to us shortly before the start of the Sabbath on Friday October 25, 2002. It was a perfect delivery, following a perfect pregnancy. Rachaeli was absolutely captivating.

Kaiden's Story

Kaiden was born December 20, 2006. He was my beautiful blue eye, blond hair angel. He was the best baby any parents could ask for. He smiled constantly and barely cried. I would tell my Mother all the time that he was my "special little man".......

Elise's "Baby Elise" Story

Elise was born December 1, 2004 in Santa Maria, California. She was an absolutely perfect baby with an easy pregnancy. We never imagined we could love someone as much as we love Elise. The next 6 months were the happiest months of our lives......

Cole's Story

Travis Cole Snellgrove was born to Wendi and Travis on April 12th, 2004. He was born with no problems and was home the next day. He was a very good baby and we had no problems with him for the first month, then he started having trouble.....

DJ's Story

Dylan James Manning (commonly referred to as "DJ") was born on Thanksgiving Day, November 22, 2001. Dylans arrival was a long awaited event for his parents, Brian and Sherri of Atglen, Pennsylvania. Although Dylan was anxious to arrive almost four weeks early, he was not quick to reach his milestones. Doctors naturally gave him a little extra time to reach things like crawling and rolling over due to his prematurity.

Amelia's Story

Amelia was born September 29, 2006 and was a sweet, easy-going baby right from the start. Her baby book filled up as it should have first smile at four weeks, rolled over at four months, babbled at five months.

Charles Story

Charles Lee Anderson was born on February 26, 2006 to Bryce and Amy Anderson. His sister Anna was 14 and brother Ben was 11. Charles Lee was so perfect.

Emma's Story

Emma Rose was born on May 17, 2004. She was very eager to enter our world - arriving before my doctor could even get to the hospital! She was a beautiful, healthy, and sweet baby.

Lacie's Story

My name is Lacie Wivell and this is my story. I was born on April 8, 2004, to Rick and Lisa Wivell. I had two older sisters, Amanda and Rikki, and two older brothers, Levi and Colby. I also had another brother, Dakota, that went to be an angel in 2001.

Mallory's Story

Mallory Rayne Salazar is a ray of light that came to us one rainy Saturday afternoon. She was born on July 14, 2007 and was 7lbs. 8oz. of pure perfection. From the first time I laid eyes on her, I knew there was something "special" about her. Little did we know just how much she would teach us.